Sponsored by AbbVie
My name is JoJo and I'm 36. When I first was diagnosed with psoriasis…I had a couple of little patches on my joints... My first really big flare-up I started getting it on other places other than the joints. I started getting it on my torso. The, the symptoms for me were like a tightness in the skin. A flaring, like a burning sensation. In like in my feet there was kinda like a cracking sensation. Some of it was like bruising. Areas got scaly… had it on the scalp. Luckily I never really had it on the face but I would have it on the, on the neck, and the back of the ears, it just really was kinda real reddish kinda patches. So I started getting a little bit insecure with my body. I love riding my bike. I love being outdoors. I enjoy being around people. There were times when I just didn't want to be outdoors, I didn't want to, I did not want to be around people. I walk dogs for a living and I have a pet sitting dog walking business so I really wasn't around people. I was around animals all the time. It's kind of one of those diseases where you feel like you really feel like you're alone. You really feel like I'm the only one that has this. I seldom had a real conversation about it. And then it got to the point where maybe I would say I had psoriasis but I would just drop the conversation very, very quickly.
It was weighing on my shoulders all the time. I mean the minute I got up I did so many things, I had so many routines revolving around my skin, and my psoriasis I used to have a card game with a bunch of guys, friends of ours we used to play cards every like Friday night. I had a little bit of a flare-up on my hands and there was a guy that said right in front of everyone, “What's that?” And I just kind of shut down. I went to the dermatologist and we came up with a plan. A treatment for me I have a great rapport with my dermatologist. I even send him e-mails. For me, I believe that, you know, if you have a good dermatologist, and you know when you have a good dermatologist, that dermatologist will go out of their way to help you. If I had a friend that was diagnosed with psoriasis I would make sure that they knew my story and they knew the things that I put myself through because I just wanted to get better. If I had to give someone advice about relationship with a dermatologist is that really, really, do your research and find out if this doctor is involved with psoriasis. You can call up you can actually visit, or you can call up your doctor or your prospective doctor and ask them, you know, “Do you work with psoriasis patients?” I'm just a normal guy, with psoriasis.
Sponsored by AbbVie
I'm Mark. I live in Fort Worth Texas. I teach horticulture. I tell people I've got the best of both worlds. I get to watch the plants grow and I get to watch the students grow. People would say, "Oh do you have poison ivy?," cause your being a horticulturist, they'd say, “Oh is that poison ivy?” And I'd have to explain to them, no it's psoriasis, and you know, trying to explain what psoriasis cause nobody really knew what it was. But you would have these big blotches, of scaly skin, that'd be real hard, crusty white. It would crack open, bleed.
There were some days I'd go home from work and I'd take my shirt off and there'd be big blotches of blood on the back of my shirt. No telling how long that had been there. I hadn't found a dermatologist that I liked.
That's my biggest complaint is a doctor that won't sit down and talk to a patient. Ya know, just like an assembly line. Get you in, look at the chart, ok, then bye. Well, I found that if, if you find a good dermatologist, he will take the time to explain things to you, answer your questions. Of course you have to ask the questions, you have to talk to him. And I think part of it is you have to, like say being informed so that you can ask intelligent questions, you can understand when they're giving you answers. I don't think people should be quiet about their psoriasis. I never have been quiet, you know, I've tried to educate people, uh, try to tell them you know when they ask about it. I try to inform them about it. You shouldn't be quiet about it, you should inform people, that this is what I'm going through. The psoriasis center that I found was actually a godsend because you know they specialize in psoriasis. You learned about psoriasis. You get to meet other people that had psoriasis. So it was very educating, you know, you know, I learned probably the most about psoriasis there.
That's why I think anybody that has psoriasis or, you know has had psoriasis for a long time, or just found out they have it, should educate themselves and then find a good dermatologist and talk to ‘em and find out what treatments are available. You can't let it stop your life. You got to live a life, you know, you got to enjoy it, so you try to do the best you can with what you have to work with. I'm really, really enjoy life.